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This is us.
I have been staring at this blank page for hours, unsure of how to begin. My brain is not able to put this into some order that makes sense, so I am just going to give you info as it pops into my...
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Neuronal Ceroid Lipofuscinosis.
It’s been a week and I still can’t pronounce it. I continue to look for someone who has been through this disease with their dog. If I can’t find one person among any breed, I’m not sure how I will...
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Grateful Hearts.
I am so thankful for each and every one of you. Each time I have come here to celebrate the boys, you have cheered us on. Every time I have come here broken hearted, you have lifted us up. To each of...
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Love, perseverance and nuclear joy.
I have so many updates I don’t know where to start. We have seen a slight bit of progression of NCL, but also, some improvements. This disease is the definition of confusion. Doug had one mild seizure...
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An update from Dizzy Doug.
Hey interweb people! You out there? It’s me, Doug E. Fresh Holupka (that just rolls off the jowls, doesn’t it?)! I’m giving the update this time because no one knows better about me than the Doug! OR...
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NCL, Coronavirus and Joy.
The whole ‘what day is it’, is so real right now. Maybe that is because every day is the same version as the previous day. I still feel like it is March 20th but that March 19th was a year ago. I have...
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We are still here!
Wow, it has been a hot minute since we’ve been on the blog! I just read our last post and I don’t think too much has changed. Most of you know, I have a blood clotting condition, so I am in a pretty...
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2020 and Joy.
I have said this one billion times before, joy is not ignoring reality, it’s about making the best of it. And in so many unlikely ways, we found joy this year. I started off the year, not knowing if...
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Time flies.
It’s been 19 months since my last blog post. It seems way longer than that. Today, has been six years since I said goodby to Jake. It doesn’t feel that long ago at all. Time is funny. Jake’s death was...
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Hi.
I’d like to say I don’t know why I never post here, but I do know. Losing Melvin and Jake back to back, was a lot of heartache, and this is where I came to try and make sense of that. The first year...
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